Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is it normal to have muscle pull on your toes especially when lying down?

A MGteam Member asked a question 💭
Pretoria, ZA
August 17
 · 
Reactions
7 Facts About Myasthenia Gravis You Should Know Read Article...
A MGteam Member

I do! It feels like my baby toe is crossing the toe next to it. I think that’s impossible, idk, but it wakes me up! Maybe it does, it pulls and it hurts enough to wake you. Like you, it only happens when I’m lying down. So wierd, isn’t it?

August 18
A MGteam Member

Mestinon is a big trigger for foot, toe, and even lower leg spasms. The can dial down over time, but at least for me they are always there…

August 18
MGteam

That's a really interesting question! Muscle pulling or cramping sensations in the toes can happen with myasthenia gravis, though MG more commonly causes weakness rather than cramping or pulling feelings.

MG-related muscle issues tend to show up in areas like:

- Arms, legs, and hands
- Neck
- Eyes
- Throat and face The Show Full Answer

That's a really interesting question! Muscle pulling or cramping sensations in the toes can happen with myasthenia gravis, though MG more commonly causes weakness rather than cramping or pulling feelings.

MG-related muscle issues tend to show up in areas like:

- Arms, legs, and hands
- Neck
- Eyes
- Throat and face The pulling sensation you're feeling in your toes, especially when lying down, is worth mentioning to your neurologist or doctor. Keeping a symptom log — noting when it happens, how long it lasts, and what makes it better or worse — can really help your care team figure out if it's connected to your MG or something else going on.

Don't ignore it, but don't panic either — your doctor is the best person to help connect the dots! 😊

August 17

Related Questions

View All

Does MG cause leg fasciculations?

A MGteam Member asked a question 💭
Clarkdale, AZ
August 8, 2025 (edited)