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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
281 questions

Prednisone Question? 15 Mg Per Day. Can I Do 10 In The Am And 5 In The Pm And Still Have The Same Effect

A MGteam Member asked a question 💭

Been doing this for a few days now and have been feeling pretty good. Also on Solaris infusions every other week. Not sure if this counts as a 15mg does but seems to be working for me and I have been doing pretty good.

How Do You Tell Whether Your Tremors Are From MG Or Essential Tremor Or Both?

A MGteam Member asked a question 💭
A MGteam Member

Hi Ken... So sorry you are dealingh with the treamors. I have it too. My head shakes from side to side constantly and my left arm shakes as well. It's the neck/shoulder muscles that are ailing me… read more

posted 2 days ago

Can Someone Tell Me Which Shoots Or Vaccines I Need To Take And Which Ones To Avoid.

A MGteam Member asked a question 💭
A MGteam Member

Shots, sorry.

posted 3 days ago

Mestinon

A MGteam Member asked a question 💭

I'm taking 120 mg of Testimony 3 x a day and 6 mg of Gylcopyrrate for diarrhea , and I just was diagnosed in February of 2024 , this is the beginning, so far I hope I can live with it , are some days different then others

A MGteam Member

Yes, I all ready have one no one could give me a,answer on this just did thank you.

posted 5 days ago

What Are Your Top Tips For Dealing With Myasthenia Gravis In The Heat?

A MGteam Member asked a question 💭
A MGteam Member

What I do is get out in morning and keep drinking plenty of fluids.

posted 3 days ago

During Plasma Wash I Hallucinated Is That Common

A MGteam Member asked a question 💭

i was admitted to the hospital with-breathing difficulties broken voice excess sweating

A MGteam Member

Hallucinations are not listed as a common side effect of plasma exchange for myasthenia gravis. Common side effects include:

- Change in heart rate or blood pressure
- Sweating
- Feeling faint or… read more

posted 6 days ago

What's The Best Way To Do Weight Training With MG

A MGteam Member asked a question 💭
A MGteam Member

For weight training with myasthenia gravis (MG), resistance-band exercises are recommended. Here are some key points:

- Resistance-Band Exercises: These exercises help increase muscle strength by… read more

posted 6 days ago

Anyone Using Ultromiris. I Am On Soliris Every Two Weeks. Ultro Is Every 8. Are You Having Any Symptoms Returning Before The 8 Weeks Are Up

A MGteam Member asked a question 💭
A MGteam Member

I am on ultro it has worked great Vyvgart did not work for me.

posted 4 days ago

Has Anyone Had Ankle Cramps From Aazthrioprine? I Woke Up In The Middle Of The Night With Really Bad Cramps In My Ankles!

A MGteam Member asked a question 💭

Both types of MG

A MGteam Member

Thanks, I drank petalite and ate a banana before bed and did not get the ankle cramps but a mild leg cramp last night. I will continue that and also drink lots of h2o and see how it goes. I don't… read more

posted 6 days ago

How Do You Handle The Weight Gain?

A MGteam Member asked a question 💭
A MGteam Member

I was consistently walking the pool 4 times a week and the Beryl hit our area. Pool is open again but now I have a skin staph infection (probably goes along with the compromised immune system - never… read more

posted 7 days ago
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