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Has Anyone Tried IVIG Octagam? I’m Supposed To Start This Week!
IVIG, including Octagam, is commonly used for myasthenia gravis as a rescue therapy or maintenance treatment. It’s administered via infusion and can help stabilize symptoms. Side effects may include… read more
So The Wife's Been Sick With Cold, Flu Like Symptoms For 10 Days And I Woke 4 Days Ago With Same Symptoms. For What It's Worth Covid Tests
Negative. All cough syrup has anti cloegenic ingredients which are contraindicated for MG. Any ideas to get rid of this phlegm so I can breathe??
Try drinking hot tea with honey or take a teaspoon of honey , pineapple juice , it helps thin mucus so you can cough it up , my Neurologist said I could drink Mullen tea does the same thing.
With MG My Muscles In My Hands Constrict Pulling My Fingers Inward. Never Spontaneously Only When Using My Hands. Is This A Symptom Of MG?
Oh thank you for asking this! I get terrible hand and foot cramps lately. I didn’t associate it with MG.
I Am Seronegative MG And Have Fatigue Still After Christmas Activities. Is There Other Medication Besides Mestinon For Me?
Make sure you have your doctor go over the side effects of each option, as well as the invasiveness and how.long the benefits last.
Has Anyone Had Bowel Incontinence Related To MG?
Thank you.
Could My MG Have Caused My Recent Diagnosis Of A-fib?
Myasthenia gravis (MG) can indirectly contribute to heart issues, including atrial fibrillation (A-fib), especially if it affects the cardiac muscles. MG-related heart complications, such as… read more
I Have MG With Mostly Symptoms Of Fatigue. Also Numb Lips. Anyone Else Have Numb Lips With MG?
Numb lips can occur in myasthenia gravis (MG), though it’s less common. MG often causes muscle weakness, which can affect facial muscles, including those around the mouth. Some MGteam members have… read more
Can You Switch From Ultromises To Yvvgart Without Any Problems
I Showed No Symptoms Of MG @ Age72 Until I Got A Covid Vaccine And Then Got Covid Anyway. Is Anyone Tracking A Relationship Between The Two?
Are there any vaccines I should avoid? I have been on Mycophenolate, 500mg 2x daily, Prednisone 5mg daily and Pyridostigmine 30mg 3x daily. Only I have pretty much stopped taking the Mycophenolate and only take Pyridostigmine 1x daily because I do not want to tone down my immune system too much in today's world. Will this hurt me in the long run? Right now I am doing fine. If I do anything that will require physical exertion I may use more of the Pyridostigmine. Is this stupid?
That was a smart question Thomas and no dumb questions related to this disease and treatment.
Often they say don’t take live vaccines when dealing with immunosupressents like what you are on.
I… read more
Does MG Cause Weight Gain And/or Bloating Or Abdominal Distention?
Thank you. I tried that medication and had to stop it the first day. I could have tolerated the diarrhea even though it was miserable, but I stopped it due to vomiting a lot of blood following the… read more
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