And what is the mode called on the BiPAP if you don’t breathe, it will kick in and breathe for you
April 27
It sounds like you're experiencing difficulty exhaling against the continuous pressure of a CPAP, and you're advocating for a BiPAP and a lying-down pulmonary function test — that's really smart self-advocacy!
With MG, breathing muscles can be weakened, and this weakness is often more noticeable when lying flat. A sitting Show Full Answer
It sounds like you're experiencing difficulty exhaling against the continuous pressure of a CPAP, and you're advocating for a BiPAP and a lying-down pulmonary function test — that's really smart self-advocacy!
With MG, breathing muscles can be weakened, and this weakness is often more noticeable when lying flat. A sitting pulmonary function test may not fully capture what's happening with your respiratory muscles in that position. Here's why your requests make sense with MG:
- BiPAP vs CPAP: BiPAP delivers two pressure levels — one for inhaling, one (lower) for exhaling — making it much easier to breathe out, which matters when your respiratory muscles are weak
- Lying-down pulmonary test: MG-related respiratory muscle weakness often shows up more significantly when lying flat, giving a truer picture of your breathing capacity
- Respiratory symptoms in MG should always be taken seriously, as they can signal progression
Bringing documented evidence of your CPAP difficulty to your appointment strengthens your case. Your neurology team should be closely involved in this conversation alongside your pulmonologist.
April 27
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