I just started CellCept maybe three weeks ago I do find I have more energy but not sure where that’s coming from but I’ll take it

I saw results right away but we're all different 🤷🏾‍♀️

Pretty much since the diagnosis of my MG, I have been on Cellcept- at 1500mg two times a day. All other medications were added to this. I had IVIG, then Plasma Asphresis ( stopped that because the port created a blood clot in my neck), back to IVIG at a lower dose. Did that for 18 month (every three weeks). Additionally, I was given Prednisone ,.but side effects at high doses are intolerable. Went off IVIG for a few months after a pacemaker was placed, but started into flares again quite soon..New neurologist and new approach, she prescribed Rituximab. I have had two rounds of Rituximab six months apart. As long as nothing traumatic happens or illness, this seems to bring me the most release from symptoms that I have had! The second dose took a little while to improve me, do to a fall which knocked me down pretty far ( no pun intended), and then illness. Now that I am recovered from both of those things, I'm doing surprisingly well!
My doctor explained that Rituximab must be in your system for a few weeks to get the full effect. We help it along with small doses of prednisone for a few weeks. Because of the fall and the cold, I was on prednisone for almost two months after my infusion. I am not on prednisone at thia time Now I know how things "work" I can plan for the down days I know are coming.

Hoping you can talk to your doctor soon and adjust your treatment to better help your MG! Working closely with my doctor on my treatment has made a big difference for my well- being with MG. Im taking Soliris and mestinon. I’ve been able to do a lot more since starting it, and no breathing issues. So thankful. Hang in there and keep fighting to feel better!❤️🎶 praying for you!