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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MGteam Member asked a question 💭
Clarkdale, AZ

Is anyone on CellCept and has it helped with your MG symptoms, or no? Also, is generic CellCept expensive? Thanks in advance for your time. ❤️

November 28, 2025
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Answer Summary

Members shared mixed but generally positive experiences with CellCept for myasthenia gravis, with several reporting improved symptoms... Read more

Members shared mixed but generally positive experiences with CellCept for myasthenia gravis, with several reporting improved symptoms including reduced vision problems, shoulder pain, and overall stabilization when combined with other medications like Mestinon, though some noted it can take six months or longer to see results. Many community members described significant cost variations, with prices ranging from as low as $16 for a three-month supply through Medicare and Kaiser to a shocking $538 copay, while members offered practical resources including GoodRx (showing $30 for sixty pills), Aneri Specialty Pharmacy for potential grants, and suggestions to contact manufacturers directly for assistance. A recurring theme was frustration with the unpredictable nature of MG flares and the financial burden of treatment, balanced by gratitude for medication options and the support of the community in navigating both the physical and financial challenges of living with myasthenia gravis.

A MGteam Member

Cellcept also called mycophenalate is an immunosuppressive drug.
I've been on it since February this year 2025. It helped reduce my blurry and double vision as well as bi lateral shoulder pain.
MG can exacerbate all muscle pain and weakness imho. It's a game changer for me when it was coupled with my mestinon

December 1, 2025
A MGteam Member

Yes thank you.

November 30, 2025
A MGteam Member

CarolErdman
If you go to the resources menu above there should be an article to fully explain.
Best explanation from me is,
When our muscles don't receive the signal from our nervous system so that it can increase in stamina when are doing daily activities then our muscles will grow weaker as we use them. This can happen any time of the day with any muscle in our bodies.
And can last for a few hours to a few weeks or months if you have not seen your neuro to receive proper meds.
I hope I was helpful.😎

November 30, 2025
A MGteam Member

I was put on Cellcept in early October and I'm now off of it. I had a flare up on vacation and it was just to get that under control along with the use of prednisone. Thankfully the extra symptoms I had have gone away so I don't need it and I'm almost off the prednisone again. There is a generic and I don't believe it was expensive however I had already met my deductible so I didn't have to pay any of it.

November 28, 2025
A MGteam Member

Hi Diane. I have been on Cell Cept for over a year. My first dose was increased Janipuary 2025 and I have been doing very well on this increased dose. I do have limited symptoms from mg so I have been lucky there. I can’t answer about cost since my cell cept is covered.

November 28, 2025

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