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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone on Cellcept and what is or was your experiences with it?

A MGteam Member asked a question 💭
Middletown, NY
July 1
 · 
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Answer Summary

Members shared their personal experiences with CellCept for myasthenia gravis, with many reporting that it significantly improved their... Read more

Members shared their personal experiences with CellCept for myasthenia gravis, with many reporting that it significantly improved their quality of life, including regaining the ability to walk, work, and go out socially. Several members noted it takes patience, as full benefits can take one to several years, and common side effects included stomach upset, fatigue, hair loss, and a need to be cautious about sun exposure due to skin cancer risk. A recurring theme was that while the side effects are real, most felt the benefits outweighed the risks, and many combined CellCept with Mestinon and low-dose steroids for the best results.

A MGteam Member

I'm the same I've been on mycophenlate mofetil for a year and I'm nearly normal life is better with it the benefits are we can do most things apart from tiredness I'm better

July 2
A MGteam Member

Hi , I’ve been on this medication for 9 years , 2 x 1000mg per day . Yes some side effects of slight drowsiness but for me the benefits far outweigh. I couldn’t walk before I went on this but this has helped my life so much , with pyridostigmine and occasional IVIG

July 2
A MGteam Member

Cellcept is a good immunosuppresant drug I am myself on cellcept , mestinon and low dose steroid .please try to avoid sunny weather

July 4
A MGteam Member

Yes ma'am, I was on cellcept for a while but I couldn't put up with the upset stomach issues it caused

July 1
A MGteam Member

Cell cept is a better choice for myaesthenia.It is better if low dose steroid is added which i am already on

July 25

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