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Damn meds but we need them.
Hi 👋🏾
Im sorry your energy is draining.
Our energy will "drain". Sometimes at the end of the day or just after any kind of task. It can be normal.
Ive learned to do as much as I can while I have my energy and take breaks during any task if I find myself getting tired.
As far as sleep goes.
That's kinda tough.
Some meds for MG will interrupt your sleep pattern.
I take cellcept 2 pills 2xs a day and mestinon 1 pill a day. My dose has gone way way down.
I read that cellcept is my culprit whenever my sleep pattern got interrupted and I have spent days and weeks nodding all day and not being able to sleep at night.
My neurologist said my dose was too high.
I hope this helped.
l too had trouble sleeping, was averaging 4-5 hours at night shortly after being diagnosed. Had a sleep study done, l have sleep Hypopnea (shallow breathing), got a Cpap machine and averaging 6-8 hours a night. Worth checking with your doctor.
Is evening weakness and difficulty staying asleep normal with myasthenia gravis?
Yes, worsening weakness in the evening is a common pattern with myasthenia gravis. For most people with MG, muscle weakness gets worse with activity throughout the day and improves after resting. This means strength is typically better in the Show Full Answer
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