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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
December 13, 2024
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Answer Summary

Members shared their experiences with extreme post-dinner exhaustion around 7 pm, with many describing a frustrating pattern of falling asleep... Read more

Members shared their experiences with extreme post-dinner exhaustion around 7 pm, with many describing a frustrating pattern of falling asleep early, waking up wide awake later, and then struggling to fall back asleep at bedtime. Several members found relief through practical strategies, including short afternoon rest breaks, increasing vitamin D3, B12, and CoQ10 supplements, eliminating processed foods, adjusting work hours, and treatments like Vyvgart infusions that helped restore energy levels to about 80% of their pre-MG normal. A recurring theme was the profound difference between ordinary tiredness and the overwhelming exhaustion of myasthenia gravis, with members validating each other's experience that this goes far beyond normal fatigue and often leaves them feeling unrefreshed even after a full night's sleep.

A MGteam Member

My exhaustion has severely limited my life lately.I usually take a 3 hour nap in the afternoons as I get really tired, lately I get really tired in the mornings as well.

January 25, 2025
A MGteam Member

In addition, I have removed any supplemental magnesium from my diet and I have focused my diet on more “clean” foods. Nothing processed. All has improved my energy levels.

December 14, 2024
A MGteam Member

Now that I have finished my second round of Vyvgart, I definitely feel like I have a little more energy and now I try to stay up until 9:00 or so. Otherwise I wake up around 3:00 to go to the bathroom and can't get back to sleep. I have learned to do well on 6:00 hours but try for 8:00. I can get to sleep most nights but have issues staying asleep.

December 15, 2024
A MGteam Member

Get rid of the pretzels.

December 15, 2024
A MGteam Member

I had the same issues. However since increasing my D3 and B12 supplements and adding in CO-Q10 along with exercise I have found my energy levels have improved.

December 14, 2024

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