Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MGteam Member asked a question 💭
TX

I often get tired but my main problem is I feel like every muscle in my body is sore all the time. I am on 2000mg of Cell Cept and one 60 mg of mestinon

October 24
 · 
Be the first to react
MGteam

That sounds really exhausting — dealing with whole-body muscle soreness on top of fatigue is a lot to manage. The good news is you're not alone in this experience, and there are some useful things to know.

Mestinon (pyridostigmine) is actually a known contributor to muscle cramps and soreness. Studies have shown that between Show Full Answer

That sounds really exhausting — dealing with whole-body muscle soreness on top of fatigue is a lot to manage. The good news is you're not alone in this experience, and there are some useful things to know.

Mestinon (pyridostigmine) is actually a known contributor to muscle cramps and soreness. Studies have shown that between 30% and 40% of people taking it report muscle cramps. The soreness can show up in:

- Eyes and face first
- Then spreading to the neck
- Arms and legs as well It's worth having a conversation with your neurologist about your current Mestinon dose. Sometimes adjusting the timing or dosage can make a real difference. As one MGteam member shared, switching from fewer higher doses to more frequent smaller doses helped ease their leg and feet cramps significantly.

CellCept (mycophenolate) is generally not linked to increased muscle pain or cramps, so Mestinon is the more likely culprit here.

Definitely bring this up with your care team — they may be able to tweak your treatment plan to help you feel more comfortable day to day.

October 24

Related Questions

View All
A MGteam Member asked a question 💭
Bridgewater, NJ

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In