What a rough stretch — going through a serious infection and then dealing with relentless flare-ups on top of managing generalized MG is genuinely exhausting. The experience shared here is something many MGteam members can relate to, especially the heat and temperature sensitivity piece.
Infections are one of the most Show Full Answer
What a rough stretch — going through a serious infection and then dealing with relentless flare-ups on top of managing generalized MG is genuinely exhausting. The experience shared here is something many MGteam members can relate to, especially the heat and temperature sensitivity piece.
Infections are one of the most well-known triggers for worsening MG symptoms and can even push someone toward a myasthenic crisis. The body's immune response during and after a serious infection can significantly disrupt the already fragile nerve-to-muscle communication that MG affects. The temperature sensitivity you're describing — sweating even at 63°F — makes sense in the context of MG. Heat interferes with nerve-to-muscle signaling, and since MG already compromises that process, even small temperature changes can feel extreme. Your body may still be in a heightened reactive state following the infection.
Some things worth discussing with your MG specialist include:
- Whether your current treatment plan needs adjusting given the ongoing flare-ups post-infection
- Monitoring for any signs of a myasthenic crisis, such as shortness of breath, difficulty swallowing, or increased weakness
- Reviewing your immunosuppressive medications, as they can increase infection risk, which could create a cycle of flares In the meantime, some practical steps that have helped other MGteam members manage temperature sensitivity include:
- Keeping indoor temperatures as cool and consistent as possible
- Using fans in addition to air conditioning
- Drinking cold beverages
- Avoiding any activity that raises body temperature
- Continuing to use your cooling vest when needed
Given the frequency of your flare-ups since the infection, reaching out to your neurologist or MG specialist soon would be really worthwhile. This level of ongoing instability deserves a close look.
July 30