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A MGteam Member asked a question πŸ’­
Netherlands
July 5
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Are you experiencing severe intestinal pain while taking mycophenolate for myasthenia gravis?

Mycophenolate mofetil is an immunosuppressant sometimes used to help manage MG, but gastrointestinal (GI) side effects β€” including stomach cramps, nausea, diarrhea, and intestinal pain β€” are among the most commonly reported issues Show Full Answer

Are you experiencing severe intestinal pain while taking mycophenolate for myasthenia gravis?

Mycophenolate mofetil is an immunosuppressant sometimes used to help manage MG, but gastrointestinal (GI) side effects β€” including stomach cramps, nausea, diarrhea, and intestinal pain β€” are among the most commonly reported issues with this medication. Here are some important things to keep in mind:

- Severity matters β€” mild GI discomfort is common, but *severe* intestinal pain should not be ignored or pushed through
- Contact your neurologist or prescribing doctor promptly β€” they may adjust your dose, suggest taking it with food, or consider switching medications
- Don't stop suddenly β€” never discontinue mycophenolate without speaking to your doctor first, as this could affect your MG management
- Sun sensitivity β€” mycophenolate also increases sensitivity to the sun, so SPF protection is important while taking it

Severe pain is your body sending a clear signal. Reaching out to your care team sooner rather than later is always the right move. πŸ’›

July 5

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