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Hi Team, I am noticing some intense head pain lately. It is a lot of pressure, pain in temples and sides of head and even back of head.

A MGteam Member asked a question 💭
Denver, CO

Or do you get this type of headache if you do activity/exercise?

February 12
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A MGteam Member

I would get the headaches checked out with your neurologist. It may be part of your MG but probably you should rule out other possible reasons.

I get head aches with my MG and usually notice them when I have been pushing to do more and not resting enough. I do think my headaches are connected with the my neck weakness.

When they start I just tell myself that it is time to get horizontal for awhile. You would think after all these years that I would be better at pacing myself. The only to allow my neck muscles to recover is to lie down. I will usually take a couple of Tylenol and make myself lie down for a couple of hours. Yes, it is a nuisance.

February 13
MGteam

Are you experiencing intense head pain and pressure with myasthenia gravis?

Head pain and pressure aren't typical primary symptoms of MG, but they can happen for a few reasons related to the condition.

One possibility is that weak neck muscles are causing strain. When the muscles supporting your head become weak, they Show Full Answer

Are you experiencing intense head pain and pressure with myasthenia gravis?

Head pain and pressure aren't typical primary symptoms of MG, but they can happen for a few reasons related to the condition.

One possibility is that weak neck muscles are causing strain. When the muscles supporting your head become weak, they have to work harder to keep your head upright. This extra effort can lead to tension headaches with pressure and pain in the temples, sides, and back of your head.

Activity and exercise can make this worse if your neck muscles are already fatigued. The repeated effort of holding your head up during physical activity might trigger or intensify the pain.

Some MG medications, particularly corticosteroids, can also cause headaches as a side effect.

It's important to talk to your doctor about these symptoms. They can help determine if the headaches are related to muscle weakness, medication side effects, or something else that needs attention. If you're having difficulty holding your head up along with the pain, this could signal that your MG needs closer monitoring or a treatment adjustment.

In the meantime, using chairs with good neck support and taking breaks to rest your head might help reduce the strain.

February 12
A MGteam Member

I have not had headaches when exercising at all. The headaches I do have are not connected to MG because I had them before.

February 13
A MGteam Member

Before I got on the cellcept (mycophenalate) my headaches were absolutely amazing.
Thank God for doctors who know what they're doing.

March 9
A MGteam Member

Migraine from weather, before storms or bp. I always have a headache, ugh.

February 27

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