It's great that Mestinon and prednisone have already helped with your vision, throat, mouth, and tongue symptoms — that's a really encouraging start! Whether your doctor will adjust your dose depends on how your symptoms continue to evolve, so it's worth keeping a close eye on what you're experiencing.
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It's great that Mestinon and prednisone have already helped with your vision, throat, mouth, and tongue symptoms — that's a really encouraging start! Whether your doctor will adjust your dose depends on how your symptoms continue to evolve, so it's worth keeping a close eye on what you're experiencing.
The returning fatigue and morning double vision are definitely worth mentioning to your neurologist soon. These could signal that your current doses need fine-tuning.
A few things to keep in mind about Mestinon timing:
- It tends to work best about 1 to 1.5 hours after taking it
- Scheduling activities and meals around that window can help you get the most out of each dose
- Muscle weakness is often worse later in the day, so mornings may naturally feel better Prednisone can also be a bit of a double-edged sword. While it helps calm the immune response driving MG symptoms, it can cause sleep disruption, mood changes, and fatigue — which may actually be contributing to how you're feeling now.
Tracking when your fatigue and double vision are worst each day and sharing that log with your doctor will really help them make the best decision about your treatment plan.
June 27
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