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Members discussed whether Mestinon or CellCept causes insomnia, with several pointing to Mestinon as the more likely culprit, noting that... Read more
Both Mestinon (pyridostigmine) and CellCept (mycophenolate mofetil) are commonly used to manage myasthenia gravis, but they work differently and have different side effect profiles.
Mestinon is the more likely culprit when it comes to insomnia. Because it works by boosting acetylcholine activity in the nervous system, it Show Full Answer
I forgot to tell you I was diagnosed with MG in February on 2024
Carol my Neurologist is reducing it because I have no systoms , no muscle weakness ,no proppy eye , no double vision he said I don't need 90mg 3 x a day to start with 60mg 3 x a day for a week if no double vision then start 60mg 2 x a day for a week if ok go to 1 a day then off , if double vision comes back start mestinon slowly and call him , other wards I won't see him until next June , I don't take any other medicine never have , he said my MG was mild but I tested high for antibodies at first 2 1/2 years ago I was taking 120mg 4 x a day of mestinon ,I have a macular pucker ( wrinkle on my retina membrane ) and Macular degeneration (dry ) also so that mess with my vision a lot , hope all goes well I need something positive in my life for once❤
I started CellCept at the outset of MG, as I was told Mestinon would take longer to have any actual effects. That was 18 years ago. The biggest issue to watch out for with CC is skin cancer. If you are not told to stay out of the sun, ask your doctor why he is not mentioning this side effect.
Long sleeve T-shirts that offer UV protection and wide brim hats the offer UV protection SHOULD be in your closet.
Brinda - are you reducing it yourself or did Dr approve? Will you be on any other meds? How long have you been diagnosed with MG?
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