Weather — especially heat — can be a real challenge for people with myasthenia gravis. Heat may interfere with the signals between nerves and muscles, which can worsen MG symptoms. Interestingly, MG hospitalizations happen more often in summer months.
MGteam members have described the struggle well:
- "Heat is horrible Show Full Answer
Weather — especially heat — can be a real challenge for people with myasthenia gravis. Heat may interfere with the signals between nerves and muscles, which can worsen MG symptoms. Interestingly, MG hospitalizations happen more often in summer months.
MGteam members have described the struggle well:
- "Heat is horrible, neck and shoulders ache."
- "I've felt pretty rough today. I've been nauseous most of the day. The heat outside is so, so hard on me. I feel like a big limp spaghetti noodle."
- "The humidity and high dew points are what sets me into flare-ups really bad."
The good news is there are ways to manage it! Here are some tips that have helped others:
- Stay indoors during the hottest part of the day
- Wear wide-brim hats and wrap-around sunglasses when outside
- Use cooling vests, cooling towels, or scarves with ice pockets
- Stay well hydrated — water is your best friend
- Keep your home cool with AC and fans
- Take cool showers to bring your body temperature down
It's important not to ignore worsening symptoms in the heat, as extreme temperatures can potentially trigger a myasthenic crisis. Always check in with your care team if symptoms change.
June 7
Yes heat is very debilitating for my daughter, humidity too
June 8
It’s hard for me too
It affects muscles and breathing
June 7
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