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I was just prescribed mestinon today, and i'm curious if anyone else has taken it. What was your experience?
Answer Summary
Members shared a wide range of experiences with Mestinon for myasthenia gravis, with many finding meaningful relief in symptoms like double... Read more
Thank you. I got to try it for the first time today and was so happy to have some relief š®āšØ.
Like Joe says, itās rarely just one thing that helps. Iāve been taking Mestinon for 5 years now plus the Vyvgart for 3 years - for me they work together. I donāt normally take my 3X per day Mestinon dose anymore, but if a flare kicks in, the 3X has had some good effectsā¦If this is Day 1, hang in there it can take a bit for real symptoms relief to kick inā¦
I take mestinon every day 3 times a day, it helps me a lot actually. I am also getting the Vyvgart infusions. Speaking for myself I am having no side effects from the medications. But while on the mestinon alone I still had some symptoms from MG, specifically chewing, but now with the Vyvgart I am not having any issues.
Mestinon is what I started on and it worked for a little while. I had a thymectomy and then I started getting double vision and so I went on prednisone and prednisone has worked for me many many years. Went into remission
Got down to a low dose of 5 mg a day
It can be a big help, but for me there was a long on ramp before it really kicked in. As Glenda says the side effects can be tough, but worth itā¦
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