My husband takes 2000 mg of CellCept daily and has no noticeable side effects. It works for some MG patients, but takes about 6 months to see the results. It was developed for transplant patients initially.

Thank you, Jean
I have recently looked up different medications and none of them are very desirable to me.
So far my symptoms are not really bad yet.
It's been a long time since I've been here after being in remission for over 30 years.
I don't currently have any weakness. Don't know if that's coming. I can function pretty normally right now. I do have shortness of breath but that's been going on for the last 5 years.
It's scary not knowing what's coming. Am I headed for a crisis or just weakness again like I had in the beginning?.
I just ordered an eye patch from Amazon and see if that can help till I get an appointment with somebody for my eyes for prism glasses.
If I can just deal with the double vision and not change my meds that's the way I'd rather go. Too many side effects from everything else
Don't know yet if that's possible. I guess time will tell.

I am taking both of those but I spoke with my Neurologist and asked if there were any other treatments available. Now I am on Vyvgart infusions, once a week for four weeks, then off for four weeks and then back on for four weeks. On and off until my doctor says otherwise. He will start tapering me off the prednisone after the second round of infusions. I don't know if he will take me off the Mestinon also but I will find out next time I see him. I had my third infusion this week and I have a lot more energy. The double vision and droopy eye were fixed with the other two medicines but the fatigue was horrible. I can actually get up and accomplish a lot of chores now. Feels real good. Also, there is something called The Assistance Fund that you can apply for to help cover the cost of the infusion. And it covers the nurse that comes to my home to administer it to me. Talk to your doctor. Praying things will get better for you.

Hi Kay. So sorry for what you're going through. I was just diagnosed with ocular mg in December but now it's spreading to the rest of my body. I get breathing problems and swallowing problems. I'm on mestinon and I'm not having any problems with it. It helps with symptoms but doesn't always help my double vision. Doctor reduced prednisone to 1mg per day. I'm gaining weight on it and that's the last thing I need. This is a strange disease. So unpredictable. Hope you find answers. 🙏😊