Agree. He does seem to be doing okay other than fatigue setting in later in the day. We’ve only seen hs neurologist once and he didn’t seem concerned. There’s just so many ‘unknowns’ to us about this disease!
October 24, 2025
Neurologist may recommend not having the surgery now if it can be delayed. I don't know your condition, and we're all different, but I would really be concerned about surgery while MG is acting up.
October 24, 2025
What advice do you need for your husband's upcoming rotator cuff surgery while managing myasthenia gravis?
Surgery can sometimes worsen MG symptoms, so it's important to take some precautions. Here's what can help ensure a safer surgical experience:
Before Surgery
- Make sure the surgical team and anesthesiologist know Show Full Answer
What advice do you need for your husband's upcoming rotator cuff surgery while managing myasthenia gravis?
Surgery can sometimes worsen MG symptoms, so it's important to take some precautions. Here's what can help ensure a safer surgical experience:
Before Surgery:
- Make sure the surgical team and anesthesiologist know about the MG diagnosis
- Request a team experienced with MG if possible
- Your husband's surgical team should talk with his neurologist about current symptoms and medications
- Ask about continuing Mestinon until the morning of surgery—this is often recommended
Anesthesia Considerations:
The anesthesiologist will need to adjust their approach for someone with MG. They'll likely:
- Use inhaled medications and IV drugs like propofol instead of neuromuscular blocking agents
- Consider local or regional anesthesia if the procedure allows, to avoid sedation side effects
- Have a plan ready in case complications arise
After Surgery:
Mestinon can typically be restarted after surgery. The care team will guide when it's safe to resume medications.
One MGteam member shared they struggled with MG symptoms after surgery, so monitoring how he feels during recovery will be important. Make sure all doctors involved are communicating about his MG throughout the process.
October 24, 2025