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A MGteam Member asked a question 💭
February 26
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Answer Summary

Members rallied around the question of whether myasthenia gravis causes frequent urination, with many sharing that their doctors gave... Read more

Members rallied around the question of whether myasthenia gravis causes frequent urination, with many sharing that their doctors gave conflicting answers, though lived experience strongly suggested a connection. Several members pointed to Prednisone and Mestinon as likely contributors, with some noticing improvement after stopping or reducing those medications, while one member discovered a benign mass pressing on their bladder was the cause. Practical tips shared included reducing fluid intake in the afternoon, limiting caffeine and salt, trying kegel exercises, and speaking with both a urologist and kidney doctor to rule out other causes.

A MGteam Member

l have read several studies that indicate incontinence can be MG related. I became incontinent at the same time I developed a droopy eyelid. Three months later I was diagnosed with MG. I don't think it is a coincidence and my neurologist agrees

March 1
A MGteam Member

I find now that I’m off the prednisone I can hold it a lot better during the day. I do however, get up 3 to 5 times a night to pee. Which is quite annoying because we’re supposed to try and get a good nights sleep, but how do I get a good nights sleep if I constantly have to get up to go to the bathroom it’s a no-win situation

February 28
A MGteam Member

Yes. And ain't nothing I can do about it.😒 I'm really hoping to be taking off of it this year🙏🏿

February 27
A MGteam Member

I have the same problem, I am on mestinon . I was told by neuromuscular dr that was because of MG

February 27
A MGteam Member

Hi kolleen
I hope you're having a good morning. Lots of strength today.
I also have an appointment with my kidney doctor next month. Maybe I can learn something there and share it with everybody as well.
My issue is going to the bathroom too many times at night. Sometimes five times. Ridiculous. Makes it really hard to get any sleep .
The last 3 days I have decided to cut back on my water intake and only drink two and a half bottles a day that would be the 16.9 Oz bottles.
That's the small Costco bottled water and it has helped me considerably.
I drink most of my water in the morning and afternoon.
The last three nights I have only been getting up twice at night and for me that's a big difference.
So after we both see our doctors we can get together and discuss if anything has helped. God bless and good luck with your appointment next month. Talk to you soon. Keep in touch okay

March 4

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A MGteam Member asked a question 💭

A MGteam Member asked a question 💭
Asse, Belgium