I have double vision constantly as well as drooping eyelids. Ultomiris and mestinon do seem to help the eyelids drooping but not the double vision. I just changed neurologists and we're going to try prednisone and zilbrysk.
April 13, 2025
Double vision (diplopia) is very common with myasthenia gravis, affecting over half of people with MG. It happens when eye muscles become weak or fatigued, causing misalignment. Some people experience this along with drooping eyelids (ptosis), which can be the first signs of MG. There are several treatment options Show Full Answer
Double vision (diplopia) is very common with myasthenia gravis, affecting over half of people with MG. It happens when eye muscles become weak or fatigued, causing misalignment. Some people experience this along with drooping eyelids (ptosis), which can be the first signs of MG. There are several treatment options available. For immediate relief, you can try wearing an eye patch or using special prism lenses in your glasses. For droopy eyelids, options include eyelid tape, eyelid crutches that attach to glasses, or in some cases, surgery.
Medications that may help include Mestinon and immune system-modulating therapies like azathioprine, prednisone, cyclosporine, or mycophenolate mofetil. MGteam members have reported success with various treatments, including Rituxan and Gamunex-C for vision improvement.
April 1, 2025
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