I have been in vyvgart since 2024. First the iv and now the shots. I prefer the shots it's less down time and seem to keep me going. I did have to increase my days to 45 from 57. That helped. I also keep a journal to keep up with symptoms

Thanks everyone for your responses! They are all helpful!

It has been hard to tell whether IViG has really done anything for me bc of the high dose of prednisone I’ve been on for months. The Dr has finally lowered me from 60mg to 40mg. I appreciate the comments about IVIG as well, they have been helpful!

Dr has also recommended Ultomiris.

I have been reading about Vyvgart as well so I appreciate all the comments. Those taking Vyvgart-any side effects or concerns? Did you notice a difference right away?

Anyone out there taking Ultomiris or tried it? Any comments?

Thanks again!

Good morning, this is Brenda Byrd from Stockton California . Thank you so much Anna Bull, I'm 77 and was prescribed VYVGART, still ,awaiting for insurance approval. I was diagnosed September 2024

I also had to stop IVIG, almost put me into a crisis. I just finished my first cycle of Vyvgart and it has made a great difference in my symptoms! I can breathe better, walk further between breaks, not as exhausted. My legs/arms still get very weak if I overdo it, but I am hoping I will continue to improve after I start my next cycle in April.

I am on Vivgart and it has worked very well for me. I know this isn’t a direct comparison but at least it’s some results of Vivgart. Good luck.