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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
December 13, 2024
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Answer Summary

Many community members related to the struggle of falling asleep right after dinner around 7pm, only to wake up in the middle of the night... Read more

Many community members related to the struggle of falling asleep right after dinner around 7pm, only to wake up in the middle of the night unable to fall back asleep, with several noting this disrupted sleep cycle is a frustrating part of living with MG. Several members shared helpful strategies including taking a short rest around 4pm to push through the evening crash, staying up until at least 9pm to improve overnight sleep, and making dietary changes like removing processed foods, adding D3, B12, and CoQ10 supplements, and cutting magnesium. A recurring theme was learning to listen to the body, adjusting work schedules or activity levels, and finding hope in treatments like Vyvgart that helped reduce fatigue over time.

A MGteam Member

My exhaustion has severely limited my life lately.I usually take a 3 hour nap in the afternoons as I get really tired, lately I get really tired in the mornings as well.

January 25, 2025
A MGteam Member

In addition, I have removed any supplemental magnesium from my diet and I have focused my diet on more “clean” foods. Nothing processed. All has improved my energy levels.

December 14, 2024
A MGteam Member

Now that I have finished my second round of Vyvgart, I definitely feel like I have a little more energy and now I try to stay up until 9:00 or so. Otherwise I wake up around 3:00 to go to the bathroom and can't get back to sleep. I have learned to do well on 6:00 hours but try for 8:00. I can get to sleep most nights but have issues staying asleep.

December 15, 2024
A MGteam Member

Get rid of the pretzels.

December 15, 2024
A MGteam Member

I had the same issues. However since increasing my D3 and B12 supplements and adding in CO-Q10 along with exercise I have found my energy levels have improved.

December 14, 2024

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