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A MGteam Member asked a question 💭
Fridley, MN

I can be tired all day, but most nights around 9 when I should be most tired, I get a burst of energy. Does anyone else experience something like this.

November 16, 2025
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Answer Summary

Members with myasthenia gravis enthusiastically confirmed experiencing unexpected bursts of energy in the evening, typically between 6 and 10... Read more

Members with myasthenia gravis enthusiastically confirmed experiencing unexpected bursts of energy in the evening, typically between 6 and 10 pm, while feeling exhausted during the day, with many finding relief in knowing they weren't alone with this puzzling pattern. Several members shared strategies for working with their body's rhythm rather than against it, including taking multiple short naps throughout the day, scheduling important tasks during their personal energy windows, and not fighting the urge to rest during flare-ups since pushing through can make symptoms last longer. A recurring theme was the importance of listening to your body without guilt, celebrating small accomplishments like completing two tasks in an afternoon, and finding humor in the absurdity of finally having energy to clean the bathroom at bedtime.

A MGteam Member

Cindy yes this does happen to me , when my husband goes to bed I'm cleaning the bathroom . straightening the desk ,,organizing something my husband gets so put out at me , he says you were so tired all day now you want to do all kinds of things , but I never run the vacuum that might be the last straw❤

December 9, 2025
A MGteam Member

Cindy, This is not a laughing matter at all.....but I couldn't help but smile at your question. 😂 I know you were questioning the timing of your energy spurts when you'd probably rather be getting on a regular sleep schedule, but dang I would love to have an energy spurt at any time of day! Maybe I would actually accomplish more. Seriously though, this illness does keep us constantly re-evaluating and adjusting. Your body will find its comfort zone for awhile and then something will change.

December 9, 2025
A MGteam Member

My sweet spot is 6 to 10 pm. No rhyme or reason for it. Out of that 4 hours I actually feel "normal" for 30 minutes. This MG is so weird.

December 9, 2025
A MGteam Member

I take my day in spurts currently. I spend 85% of it in the couch or in bed and the other 15% pushing myself to get up and do small things and then rest. So my days currently all depend on my energy level.

November 26, 2025
A MGteam Member

Yay!! But don't overdo it.
Stay hopeful 😎

November 19, 2025

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