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A MGteam Member asked a question 💭
London, UK
5 days ago
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A MGteam Member

I have a neck fan I use when I get overheated - it does help.

4 days ago
MGteam

Yes, body temperature and heat are closely connected to myasthenia gravis flares. Heat can interfere with the signals between nerves and muscles, which are already compromised with MG — making symptoms feel more intense.

This can work both ways:

- External heat (hot weather, hot showers, overexertion) can trigger or Show Full Answer

Yes, body temperature and heat are closely connected to myasthenia gravis flares. Heat can interfere with the signals between nerves and muscles, which are already compromised with MG — making symptoms feel more intense.

This can work both ways:

- External heat (hot weather, hot showers, overexertion) can trigger or worsen a flare
- Your body heating up during activity or illness can also set off worsening symptoms

MGteam members have described feeling like "a big limp spaghetti noodle" in the heat, and others have reported headaches, fever, and feeling very unstable after too much time outdoors. It's really important not to ignore worsening symptoms during these times, as extreme heat can escalate to a myasthenic crisis, which is a medical emergency requiring hospitalization.

Some helpful ways to manage this include:

- Staying in air-conditioned spaces during peak heat
- Taking cool showers to bring body temperature down
- Staying well hydrated
- Using cooling vests, towels, or scarves
- Resting as soon as you notice symptoms worsening

Always contact your doctor if you notice new or rapidly worsening symptoms.

5 days ago

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