I’ve had rituxaban and had really good results! Took it for quite sometime until my ra decided it didn’t like it. It’s worth trying imo
August 27
I saw aseptic meningitis! I just got recently diagnosed and looking into treatment options myself.
August 21
It's completely understandable to feel hesitant about rituximab — the side effect list for any medication can feel overwhelming at first glance!
Many MGteam members have shared experiences with rituximab, and reactions are mixed. Some have found it helpful, especially for MuSK antibody-positive MG, while others have had Show Full Answer
It's completely understandable to feel hesitant about rituximab — the side effect list for any medication can feel overwhelming at first glance!
Many MGteam members have shared experiences with rituximab, and reactions are mixed. Some have found it helpful, especially for MuSK antibody-positive MG, while others have had concerns similar to yours.
Here's what's worth knowing about MuSK antibody-positive MG and treatment:
- Mestinon (pyridostigmine) tends to work less effectively for MuSK-positive MG compared to other types
- Around 20% of MuSK-positive people actually experience worsening symptoms on Mestinon
- Immunosuppressants are often the preferred route for MuSK-positive MG
- Rituximab is one option doctors consider when other treatments aren't working well enough One important caution worth flagging — rituximab targets B cells, which play a role in fighting infections like viruses. This is something to discuss carefully with your neurologist, who can help weigh the risks against the potential benefits for your specific situation.
It's always worth having an open conversation with your MG specialist about all available options before making any decisions. Your antibody status, symptom pattern, and how well your current treatment is working will all shape what's right for you.
August 21
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