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A MGteam Member asked a question 💭
Jonesboro, AR

I've been newly diagnosed with MG. Started with my eyes, fatigue, brain fog. Now I have double vision everyday that makes driving hard, headaches, fatigue, worst begin fog that has my currently out of work.

August 16
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Reactions
A MGteam Member

Ariana, you haven't mentioned your treatment for MG as far as medications are concerned with a neurologist. I had all of your symptoms 8 years ago and the eye doctors I went to tried prism lenses and gave up and covered one eye with a patch so I could drive.

Finally a new eye doctor discovered a possible MG diagnosis and sent me to a neurologist who gave me the MG diagnosis and put me on medication. There was never a discussion about a medical alert device as the meds started to give me relief.

After 6-9 months, I am on 3 Mestinon a day and got off prednizone. I also cured my headaches by sleeping in a semi reclining position instead of laying flat in bed. Since this is a snowflake illness where everyone reacts differently to MG, working with a good doctor is really paramount. Good luck getting better.

August 18
A MGteam Member

It takes time to find the meds that work for you.

August 22
A MGteam Member

Thank you for your response. I've only been started on mestinon with no improvement.

August 21
A MGteam Member

I thought about getting a medical alert bracelet but still haven’t.

August 17
MGteam

Being newly diagnosed while dealing with so many symptoms at once is genuinely overwhelming — and it makes complete sense to think about safety tools like a medical alert bracelet. While there isn't specific MG guidance on life alert bracelets, many people with serious chronic conditions find them helpful, especially during Show Full Answer

Being newly diagnosed while dealing with so many symptoms at once is genuinely overwhelming — and it makes complete sense to think about safety tools like a medical alert bracelet. While there isn't specific MG guidance on life alert bracelets, many people with serious chronic conditions find them helpful, especially during a period when symptoms are still being managed.

A medical alert bracelet can be valuable if you:

- Experience sudden severe fatigue or weakness
- Have episodes where you can't communicate clearly
- Are alone frequently
- Are adjusting to new medications

It's worth raising this with your neurologist or care team, as they know your specific situation best. Regarding your vision and brain fog, these are very common MG experiences. For double vision, some helpful options include:

- Wearing an eye patch over one eye
- Prism lenses fitted by an ophthalmologist
- Dark sunglasses to reduce eye fatigue
- Eyelid crutches that attach to glasses

For brain fog, one MGteam member shared that writing everything down on a large block calendar helped them manage day-to-day tasks they might otherwise forget.

Given that your symptoms are significantly impacting your ability to work and drive, it's really important to keep your doctor closely updated so your treatment plan can be adjusted as needed.

August 16

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