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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
July 1
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Answer Summary

Members weighed in on whether neurologists should explain all medication side effects, with many agreeing that self-advocacy and personal... Read more

Members weighed in on whether neurologists should explain all medication side effects, with many agreeing that self-advocacy and personal research are essential since doctors don't always have time to cover everything. Several members shared experiences with prednisone, noting benefits like symptom relief but also serious side effects including weight gain, high blood sugar, cataracts, and osteoporosis, with some successfully transitioning to Cellcept and Mestinon. A recurring theme was the importance of checking drug interactions through pharmacists, online resources, and specialist coordination to stay safe across multiple medications.

A MGteam Member

I look up every medicine that my husband takes on the internet to make sure that there are no problems with other medicines. I look up side effects too and go through his entire list of medicines to make sure there will be no problems. Whenever he gets a new medicine I check to see if it works well with his other meds. Sometimes he has to change when he takes that particular medicine so that it doesn't interact with another medicine. I never leave it to the doctor to tell me everything - they just don't have time. You can also call your pharmacy to get the information.

October 26
A MGteam Member

There was a time I would've said yes. But what is your doctor is not an expert in MG?
that's why u decided to read up on MG and learn how to advocate for myself in the doctors office
While I don't make the decision at least I'm aware of what they are talking about and I can go through my chart dx pretty well now.
Also is rather be referred to an expert than depend on my red m regular neuro. Although we could learn together my dx can't wait that long.

July 2
A MGteam Member

I’m off of it too now due to increasing my blood glucose level through the roof. It’s a wonder drug cleared up all my MG symptoms but needed to be weaned off of it. As I was being weaned I went on cellcept and continued my mestinon and all is still good! No symptoms came back - only still have fatigue and some muscle weakness so I rest.

July 2
MGteam

Yes, absolutely — your neurologist should be your go-to person for discussing the side effects of any MG medications they prescribe. It's a completely reasonable expectation, and frankly, it's part of their job!

Treating MG always involves balancing the risks and benefits of medications. Your neurologist should walk you Show Full Answer

Yes, absolutely — your neurologist should be your go-to person for discussing the side effects of any MG medications they prescribe. It's a completely reasonable expectation, and frankly, it's part of their job!

Treating MG always involves balancing the risks and benefits of medications. Your neurologist should walk you through:

- Short-term and long-term side effects
- Whether the side effects are worth the benefits you're getting
- What to watch for and when to report changes
- How side effects might interact with other medications you're taking That said, there are times when a referral makes sense. For example, your neurologist might loop in a pharmacist to check for drug interactions, or refer you to a specialist if a side effect falls outside their area of expertise.

The key is open communication. If you feel your concerns aren't being addressed, don't hesitate to push back and ask directly. You and your neurologist are a team, and you deserve clear, honest answers about your treatment.

July 1
A MGteam Member

Very true. I like to be pro-active. Try to learn all I can.

July 2

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