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I have ocular and GMD symptoms that I would classify as moderate and migratory. I feel my sleep has been severely diminished since my diagnosis. Any info on sleep pattern disturbances? I typically get only 4 hours of sleep at night. Sometimes I’m able to nap during the day which helps, but sometimes if I do too much during the day I become extremely exhausted to the point that I am unable to function, but also unable to relax. My body feels like it is going into crisis, but I am unable to relax… read more

July 1
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Sleep disruption is very common with myasthenia gravis — more than half of people with MG experience insomnia. Poor sleep can worsen brain fog, memory, and overall fatigue, creating a frustrating cycle that's hard to break.

What you're describing — being too exhausted to function but unable to relax or sleep — is something Show Full Answer

Sleep disruption is very common with myasthenia gravis — more than half of people with MG experience insomnia. Poor sleep can worsen brain fog, memory, and overall fatigue, creating a frustrating cycle that's hard to break.

What you're describing — being too exhausted to function but unable to relax or sleep — is something others with MG relate to. An MGteam member described it well: "There's the fatigue of specific muscles and then there is the whole-body fatigue... a kind of crushing weariness." That "too tired to sleep" feeling is real and recognized. Regarding THC, there isn't specific clinical research available connecting THC use directly to MG symptom management. It's worth having an open conversation with your neurologist about it, especially since some substances can interact with MG medications or affect muscle function.

A few general sleep strategies that may help people with MG include:

- Pacing activity during the day to avoid hitting that exhaustion wall
- Warm baths (as you've already discovered — great instinct!)
- Tracking fatigue patterns to share with your doctor
- Discussing medication timing with your neurologist, as some MG treatments can disrupt sleep

Only 4 hours of sleep is genuinely concerning for someone managing MG. Good sleep directly supports muscle function, memory, and energy. Bringing your sleep log to your next appointment could really help guide better strategies.

July 1

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