Answer Summary

Members shared deeply divided experiences about whether foot pain, spasms, and sensitivity are related to myasthenia gravis, with some... Read more

Members shared deeply divided experiences about whether foot pain, spasms, and sensitivity are related to myasthenia gravis, with some reporting that their neurologists insisted MG doesn't cause pain while many others firmly believed their symptoms were connected to the condition or its medications, particularly Pyridostigmine and Mycophenolate. Several members offered practical strategies that helped them manage nighttime cramping and pain, including drinking pickle juice, using compression socks, applying Vicks VapoRub or castor oil, taking warm Epsom salt baths, stretching regularly, keeping feet warm with heated blankets, using foot massagers, and timing Mestinon doses to end by mid-afternoon. A recurring theme was the frustration of conflicting medical advice and the wide variation in how MG and its treatments affect each person, with many members emphasizing the importance of advocating for yourself, tracking your own patterns, and finding what works for your unique body.