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Hour before eating or 2’hours after dinner? Then the after dinner pill apparently causes me insomnia ???

June 26
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A MGteam Member

I've heard that Cell Cept doesn't cause insomnia, although I tend to have some restless nights at times, as my mind runs amok fixing every problem on the planet, or mulling over things I've done 50/60 years ago. 😒

My schedule runs so that I take my morning dose (1000mg) at around 8/9am, and the evening dose (1000mg) around 8/9pm, paying no regard to when I have eaten. This seems to work for me.

June 26
A MGteam Member

Hi Carole,
Denis has never taken it at 12 hr intervals, this is new to us and he has been on it since 2004. He takes 2 (500 mg tablets) as soon as he gets up in the morning (7-8 am) and then again about 4 pm so he is okay for dinner anytime after 5 pm. His bottle just says take 2 tablets by mouth 2 times a day and we knew about the 1 hr before or 2 hours after, just never heard the 12 hours apart. He does great and is in remission with it. Hope this helps.

June 26
MGteam

That's a genuinely tricky scheduling puzzle — and the insomnia on top of it makes it even more frustrating to navigate!

The 12-hour spacing for CellCept (mycophenolate mofetil) is considered important for maintaining steady levels of the medication in your bloodstream. Uneven spacing can affect how well it works to manage Show Full Answer

That's a genuinely tricky scheduling puzzle — and the insomnia on top of it makes it even more frustrating to navigate!

The 12-hour spacing for CellCept (mycophenolate mofetil) is considered important for maintaining steady levels of the medication in your bloodstream. Uneven spacing can affect how well it works to manage MG symptoms.

Here are some things worth discussing with your neurologist or pharmacist: - Meal timing flexibility — Ask whether shifting dinner earlier or taking the dose slightly later could work without compromising the 12-hour window
- Liquid form — CellCept is available as an oral suspension, which may have different timing flexibility
- Insomnia concerns — Your doctor may be able to adjust timing or explore whether another factor is contributing
- Pharmacist input — Pharmacists are often very helpful with these kinds of scheduling conflicts and can advise without needing a full appointment

Designing your medication plan around your energy levels and daily routine is genuinely important for staying consistent with treatment. Bringing this specific conflict to your care team is the best next step — it's exactly the kind of practical issue they can help solve.

June 26
A MGteam Member

Hola ,por.mi parte llevo casi 1 año ya con cellcept y tomo am y pm generalmente cada 12 horas 1000 más pero si salgo y me toca la hora los llevo y tomo ,,,reconozco que 1 o 2 veces me he saltado dosis ,y gracias a Dios no han causado efecto contrario.
Que estés muy bien
Un abrazo a cada uno de los guerreros .

June 29
A MGteam Member

Thank you Denilyndee / great advice to talk to a pharmacist and thanks for your words of encouragement sometimes we just need to hear it especially from the ones that truly know what we’re going through. Baby steps as I’m told.

June 26

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