I spent the first two years of MG holding off from other people because it felt like such a strain. Being "present" in conversations, phone calls, even internet exchanges, felt like they were too much, dangerous and threatening. Then I realized that I HAD TO strain and push, there's no one around to help. Taking charge of my own health requires a lot of "push." So I've had to force myself to do it. And you all know it takes a LOT of interpersonal effort and force to do that. And I'm POOPED. Any… read more
Thanks, Marybeth. I don't have the option. My complicated medical situation (much more than MG) requires my "being present" with oppressive frequency.
Hi Robert. Sorry you're having problems. When I get tired, especially at the end of the day, and I'm on the computer sometimes I just have to admit I'm exhausted and stop. My vision gets blurred anyway so I can't take anymore. Sometimes it's a strain to physically talk to someone or I"m so tired and preoccupied with not feeling well that I can't concentrate on what the other person is saying to me. It's alright to have limits. Maybe take care of business stuff only when you're feeling better. Take care.🙂
That exhaustion is so real, and honestly, the fact that you've pushed through it for your own health is remarkable. You're essentially running a one-person operation managing a complex condition — that's a heavy load.
Here are some ways to conserve interpersonal energy while still getting things done: Streamline medical Show Full Answer