Hello Ronda, I lived in New Orleans during the summer when I had my last Immunoglobulin , different medications but the similarity is that you need to stay put of direct sunlight but I found just being jn stifling heat my MG was be active, I'd be sluggish , no energy , hard to walk talk and eat that os if I stayed in the heat. Once in AC and relaxing, I'd feel better..

Rhonda, well that sounds scary doesn’t it when the neurologist has no idea what to prescribe you. It makes you think that we’re just guinea pigs and they have no idea about this disease. I get it. We’re like snowflakes everybody’s different blah blah blah.

The IVIG my neurologist prescribed for me is gamunex-c. That’s all I’m taking right now and it’s a monthly infusion that the nurse comes to the house. It’s my first one since June I started to feel better until my third week of the infusion.

Thank you Carol and Marco. I did Rystiggo for 6 weeks, took 4 weeks off, then did 3 more and said no more. Swelling in feet and legs stopped, but there was no help with Mg for me. For the last two months I have been doing pt for left arm weakness and showing slow recovery. For 4 to 6 weeks I have had severe light sensitivity, double vision and pytosis to the point that reading has become difficult and no longer able to drive or do volunteer work. The vision has messed up by balances so use a cane often. Am back on Vyvgart at my request. Neurologist said she does not know what to prescribe for me.

Oh no Rhonda. Take care of yourself. If you weren’t like this before the infusions you would think it’s from them but I’m no doctor. It’s a crazy disease for sure so unpredictable.

I am in Cancun for a few more days. Humidity with heat is awful. Am very achy this morning. Left arm almost useless and walking difficult. Six weeks ago my feet and legs started swelling. Neurologist does not think it is Rystiggo but it started around 3rd infusion, two months before this present vacation. Want answers and not getting any. Will see my primary in a week about this edema.