Hello Ronda, I lived in New Orleans during the summer when I had my last Immunoglobulin , different medications but the similarity is that you need to stay put of direct sunlight but I found just being jn stifling heat my MG was be active, I'd be sluggish , no energy , hard to walk talk and eat that os if I stayed in the heat. Once in AC and relaxing, I'd feel better..

Oh no Rhonda. Take care of yourself. If you weren’t like this before the infusions you would think it’s from them but I’m no doctor. It’s a crazy disease for sure so unpredictable.

I am in Cancun for a few more days. Humidity with heat is awful. Am very achy this morning. Left arm almost useless and walking difficult. Six weeks ago my feet and legs started swelling. Neurologist does not think it is Rystiggo but it started around 3rd infusion, two months before this present vacation. Want answers and not getting any. Will see my primary in a week about this edema.

This is my 1st summer in FL with MG. I’m extremely careful only in sun to walk into a store lol. Went in the pool once but took all the precautions. I usually go out around 7:30pm when the sun is off my deck to get some fresh air and walk around.