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I’m in Seattle. When I try playing golf now, despite driving a cart, I'm exhausted. What is my best bet to both develop and maintain strength. Are there PT’s educated in the subtleties of the complex disease?

May 20
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MGteam

First off, a Christmas diagnosis — that's quite the unwanted gift. But your decades of staying active is genuinely a great foundation to build on, even as MG changes the rules of the game a bit.

The exhaustion you're feeling on the golf course is very common with MG. Muscles tire more quickly with repetitive use, and even Show Full Answer

First off, a Christmas diagnosis — that's quite the unwanted gift. But your decades of staying active is genuinely a great foundation to build on, even as MG changes the rules of the game a bit.

The exhaustion you're feeling on the golf course is very common with MG. Muscles tire more quickly with repetitive use, and even low-intensity sustained activity can drain energy fast. The good news is that staying active is still very much possible — it just requires a smarter approach.

Here are some exercise strategies that work well for people with MG:

- Low weight, fewer reps — avoid pushing muscles to exhaustion
- Frequent rest breaks — let muscles recover between efforts
- Morning sessions — muscle weakness tends to worsen later in the day
- Stretching — low-energy but genuinely beneficial, and many MGteam members swear by it
- Walking — great for preserving strength and mobility Regarding finding a good PT — yes, they exist, though MG is rare enough that not every therapist will have direct experience with it. The key is finding someone willing to learn alongside you and coordinate with your neurologist.

A good PT for MG should factor in:

- Exercise intensity — high-intensity is not recommended
- Your medication timing — if you take pyridostigmine, scheduling sessions 1.5–2 hours after your dose (when it's most effective) is ideal
- Symptom monitoring — if eyelid drooping worsens during a session, that's a sign to ease back

Starting with a referral from your neurologist is the best path. They can connect you with someone familiar with neuromuscular conditions and help build a plan tailored to keeping you on that golf course — even if the game looks a little different now.

May 20

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