Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I had received IVIG day one and on day two the second dose of every 21 days regimen eight days later I develop the Pulmonary

May 18
 · 
Be the first to react
MGteam

That sounds like a really frightening experience, and it's completely understandable to want answers about what happened.

Blood clots, including pulmonary emboli, are listed as a rare but serious risk associated with IVIG treatment. While they are considered uncommon, they are a known potential complication that medical Show Full Answer

That sounds like a really frightening experience, and it's completely understandable to want answers about what happened.

Blood clots, including pulmonary emboli, are listed as a rare but serious risk associated with IVIG treatment. While they are considered uncommon, they are a known potential complication that medical teams monitor for. To help reduce these risks during future infusions, doctors and infusion staff typically take precautions such as:

- Testing blood before and after infusions to monitor for changes
- Encouraging good hydration before and during treatment
- Adjusting the infusion rate if any side effects appear
- Closely monitoring for serious reactions throughout the process

Because this is a serious event that happened to you personally, it's really important to have a detailed conversation with your neurologist before continuing or resuming IVIG. They may need to reassess whether IVIG remains the right treatment option, adjust dosing, or explore alternative therapies for managing your MG symptoms.

Please don't hesitate to advocate strongly for yourself in those conversations — what you experienced deserves thorough follow-up.

May 18

Related Questions

View All
A MGteam Member asked a question 💭
Little Canada, MN