Mine is the opposite. It's like my lungs for get to breathe. I catch myself randomly suffocating and then have to gasp.
April 22
That sounds exactly like what I experienced 6 years ago when my gMG first hit - be careful out there and be sure to loop your neurologist in…🙏
April 23
Are you experiencing episodes where you can't exhale and it feels like hitting a brick wall, requiring you to push the air out?
This sounds like a frightening breathing difficulty. Respiratory muscle weakness in myasthenia gravis can affect both inhaling and exhaling, making it feel like your muscles aren't responding Show Full Answer
Are you experiencing episodes where you can't exhale and it feels like hitting a brick wall, requiring you to push the air out?
This sounds like a frightening breathing difficulty. Respiratory muscle weakness in myasthenia gravis can affect both inhaling and exhaling, making it feel like your muscles aren't responding properly to get air in or out of your lungs.
What you're describing could be related to:
* Weakness in the muscles that control breathing (diaphragm and intercostal muscles)
* A potential myasthenic crisis, which occurs when respiratory muscles can't move enough air
* Muscle fatigue that makes it harder to control your breathing
This is a serious symptom that needs immediate medical attention. Between 10-20% of people with generalized myasthenia gravis will experience a myasthenic crisis at least once, and it's a life-threatening emergency requiring urgent care.
Please contact your neurologist or neurology team right away about these episodes. If you're having severe difficulty breathing, go to the emergency room or call emergency services immediately.
While you're waiting for medical help, breathing techniques like box breathing or belly breathing might provide some relief during milder episodes, but they're not substitutes for medical treatment when you're struggling to breathe.
April 22