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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
March 10
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Answer Summary

Members discussing prism glasses for myasthenia gravis-related double vision shared overwhelmingly positive experiences, with many describing... Read more

Members discussing prism glasses for myasthenia gravis-related double vision shared overwhelmingly positive experiences, with many describing prisms as life-changing tools that allowed them to read with both eyes open and function normally again, even when Mestinon alone didn't fully resolve their vision issues. Several members detailed their journeys with prism strength adjustments over time, ranging from temporary eye patches and high-strength prisms initially to gradually weaker prescriptions or no prisms at all as their condition stabilized with medications like Mestinon, prednisone, and Azathioprine. A recurring theme was the importance of working with a neuro-ophthalmologist or optometrist experienced in fitting prisms, balancing medication side effects like leg cramps with vision needs, and finding hope in the community's shared experiences of vision improvement.

A MGteam Member

Bad enough to interfere with your vision , I take Mestinon it opens my eye but it doesn't take away all of the double vision , my double vision is better than before mestinon but I still have some , so I had prisoms fitted for me and they are a game changer ,I've had them for 16 months and have never had to change them ❤

April 3
A MGteam Member

I can only read with my left eye, and my right eye closed. The prisoms made a huge difference.. i can read with both eyes open!

March 10
A MGteam Member

I had eye id surgery on my left eye since it was covering my pupil. The insurance covered this because I had Graves’ disease. Years later 2025 I started having double vision. Through my own research I read that there is a connection between Graves and MG. Thankfully Mestinon is working now but I will do prism glasses if I have start bad side effects form Mestinon. Everyone has to I what is best for them at the time.

March 20
A MGteam Member

That is so awesome William that you're doing better and don't have double vision.
I can't even imagine what you went through having surgery on your eyelid. Wow.
Doctors just don't know sometimes and we seem to be guinea pigs.
I'm sorry you went through that .
On the other hand its fantastic that you are doing so much better. No more double vision. No more prism glasses .
Prayers can be answered. We just have to stay positive sometimes and do a lot of praying.
Have a good evening. William, prayers are with you

March 11
A MGteam Member

Hello Everyone:
My left eye lid closed suddenly one day and a year and a half later I had eye lid surgery and a random blood test afterward found the cause was MG. So I was started on Azathioprine and prednisone and the left eye lid opened up immediately and completely and that was almost 4 years ago. But as soon as it opened up I had double vision and fuzzy close up vision. I had severe prisms added to my new lenses and each year that went by I got new lenses and less severe prisms. I have no prisms today and no double vision. Life is good. The prisms were a great tool for sure.

Cheers, Bill Z

March 11

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