My bulbar symptoms are the worst of everything, causing me to not eat somedays. I get exhausted after eating something as simple as noodles. I can barely stay hydrated too. I want to be able to eat, drink, and speak without my muscles giving out so easily.
Not sure if what has helped me will be effective for you, but depending on what your treatment is, I have found that getting enough sleep, sleeping elevated to prevent aspirations at night, and refraining from steak and other meats and other foods that require lots of chewing helps to minimize symptoms. I also eat lots of soups, stews (not beef), and taking smaller bites all help to make eating and drinking less demanding and problematic. I am on IVIG infusions and occassionally take Mestinon when needed to augment the effectiveness near the end of a treatment cycle (every two weeks). Also, if you're taking Mestinon, wait an hour or two after dosing before attempting to eat. Traditional soups rather than ramen, should make it easier. Do you ever aspirate or experience slurred speech?
How can you better manage bulbar symptoms that make eating, drinking, and speaking exhausting?
It sounds incredibly frustrating to feel worn out from something as basic as eating noodles. The good news is there are practical strategies that can help make eating and drinking safer and less tiring.
Meal Timing and Frequency
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