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A MGteam Member asked a question 💭
Jerome, ID

My bulbar symptoms are the worst of everything, causing me to not eat somedays. I get exhausted after eating something as simple as noodles. I can barely stay hydrated too. I want to be able to eat, drink, and speak without my muscles giving out so easily.

February 5
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A MGteam Member

Not sure if what has helped me will be effective for you, but depending on what your treatment is, I have found that getting enough sleep, sleeping elevated to prevent aspirations at night, and refraining from steak and other meats and other foods that require lots of chewing helps to minimize symptoms. I also eat lots of soups, stews (not beef), and taking smaller bites all help to make eating and drinking less demanding and problematic. I am on IVIG infusions and occassionally take Mestinon when needed to augment the effectiveness near the end of a treatment cycle (every two weeks). Also, if you're taking Mestinon, wait an hour or two after dosing before attempting to eat. Traditional soups rather than ramen, should make it easier. Do you ever aspirate or experience slurred speech?

February 19
MGteam

How can you better manage bulbar symptoms that make eating, drinking, and speaking exhausting?

It sounds incredibly frustrating to feel worn out from something as basic as eating noodles. The good news is there are practical strategies that can help make eating and drinking safer and less tiring.

Meal Timing and Frequency

Show Full Answer

How can you better manage bulbar symptoms that make eating, drinking, and speaking exhausting?

It sounds incredibly frustrating to feel worn out from something as basic as eating noodles. The good news is there are practical strategies that can help make eating and drinking safer and less tiring.

Meal Timing and Frequency

Plan meals when you feel strongest during the day. Instead of three full meals, try eating six smaller meals throughout the day. This can help you get enough calories without exhausting your muscles as much.

Making Foods Easier to Manage

Here are some ways to reduce the work your muscles need to do:

- Chop foods into fine pieces or blend them into a paste to minimize chewing
- Add sauce, sour cream, or yogurt to make foods moister and easier to swallow
- Eat soft, nutrient-rich foods like mashed potatoes, bananas, and avocados
- Consider pureeing soups if chunks are difficult
- Drink smoothies with yogurt, milk, and peanut butter for protein when liquids are easier

Hydration Tips

Thicker liquids are often safer and easier to swallow than thin liquids. You might find that thickening your drinks helps you stay hydrated more easily. Swallowing Safety

To reduce choking risk and prevent food from entering your lungs:

- Take smaller bites
- Chew food thoroughly
- Take breaks while eating as needed
- Avoid foods that combine textures (like cereal with milk or chunky soups) - eat components separately instead
- Practice swallowing exercises

Medical Management

It's really important to talk to your neurologist about these worsening symptoms. New or worsening bulbar symptoms can signal disease progression, and your doctor may need to adjust your treatment plan or add therapies. They might also recommend assistive devices or refer you to a speech therapist who can teach specific swallowing techniques.

The exhaustion and difficulty you're experiencing with eating and drinking are serious concerns that deserve medical attention, especially since inadequate nutrition and the risk of aspiration pneumonia are real complications of bulbar symptoms.

February 5

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