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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does the cold affect us with MG as heat does. Definitely struggle by a litte more than usual.

A MGteam Member asked a question 💭
Leola, PA
January 4
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Answer Summary

Members shared that cold weather affects myasthenia gravis (MG) in various ways, with some finding it triggers worsening symptoms like double... Read more

Members shared that cold weather affects myasthenia gravis (MG) in various ways, with some finding it triggers worsening symptoms like double vision, breathing difficulties, muscle weakness, and joint pain, while others struggle more with heat or experience both as triggers. Several members described practical strategies including layering clothing, using heat packs, staying indoors during extreme temperatures, carrying sweatshirts and ice packs when going out, and being vigilant about preventing chills that can lead to dangerous flares requiring hospitalization. A recurring theme was the unpredictable nature of temperature regulation with MG, with many describing sudden internal chills even in warm weather, exhaustion from temperature extremes, and the need to listen carefully to their bodies while staying hopeful and prepared.

A MGteam Member

Alicelloyd and Terry
That's why I try to wear thin layers in summer and medium in winter, mm and carry a shawl or wide scarf.
It's become my fashion statement
Having that inner chill keeps me at home during the winter because I cannot handle the cold well even without MG.
The ac has not been my friend. Thankfully I have a sun porch I can retreat to in summer. Even though I have central heating I still need a space heater when I get those chills out of no where that don't go way.
Its not like menopause. In menopause at least we had a reprieve and it didn't last forever.
I catch a chill or get overheated and it absolutely drains me for the day.

March 17
A MGteam Member

Forewarned is forearmed

January 5
A MGteam Member

David Newman- I'm living temporarily with my sister & husband and they keep their home colder ( way colder) than I'm used to. Can't kick a gift horse in the mouth, so I've learned to layer, wear sweatshirts and heavy socks. The wind here lately has taken its toll and yes, chilled to the bone. Now I'm in bed with " something", whether flu or cold I don't know. After reading your story, I will be VERY attentive to my symptoms and how I feel?

January 5
MGteam

Does cold weather affect myasthenia gravis symptoms like heat does?

While heat is a well-documented trigger that worsens MG symptoms, the available information focuses primarily on how warm temperatures affect muscle weakness and fatigue. Heat interferes with nerve-muscle communication, which is already compromised in MG.

Show Full Answer

Does cold weather affect myasthenia gravis symptoms like heat does?

While heat is a well-documented trigger that worsens MG symptoms, the available information focuses primarily on how warm temperatures affect muscle weakness and fatigue. Heat interferes with nerve-muscle communication, which is already compromised in MG.

Cold weather isn't discussed as extensively as a trigger in the same way heat is. However, your experience of struggling a bit more than usual in cold weather is valid. Everyone's MG responds differently to various environmental factors.

If you're noticing that cold affects your symptoms, it's worth tracking when and how this happens. Some possibilities could include:

* Muscle stiffness from cold temperatures
* Changes in activity levels during colder months
* Indoor heating that might dry out airways
* Less physical activity leading to deconditioning

The key is listening to your body and noting patterns. If cold weather consistently worsens your symptoms, discuss this with your neurologist. They can help determine if adjustments to your treatment plan might help during colder months.

Stay warm, pace yourself, and don't hesitate to rest when you need to—just as you would in hot weather.

January 4
A MGteam Member

The heat can be devastating with us. I learned the very hard way because I love sunshine and the beach just being outside.
Just dont stay our for long
If you feel tired find a way to go inside where it is cool and away from windows and just recharge.
Know you're body MG is not smart it will exacerbate everything.
Stay hopeful 😎

March 9

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