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Newly diagnosed, have been so so ill with generalized m g. Still really bad but can lift my head and hands and swallow properly since I started on mg prednisolol and 60 mg x 4 mestinon. But I will need a higher dose. Very tired, can´t go outside and walk with a rollator inside. I live alone and it gives me anxiety and fear. Are there any more medication that helps you?

November 18, 2025
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What medications do people with MG typically take, and are there additional options beyond prednisone and Mestinon?

It's encouraging that you're seeing some improvement with swallowing and movement. Many people with MG take similar medications to what you're on, and there are additional options your doctor might consider.

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What medications do people with MG typically take, and are there additional options beyond prednisone and Mestinon?

It's encouraging that you're seeing some improvement with swallowing and movement. Many people with MG take similar medications to what you're on, and there are additional options your doctor might consider.

Common medications include:

* Acetylcholinesterase inhibitors like pyridostigmine (Mestinon) - helps nerves communicate with muscles
* Corticosteroids like prednisone - can improve symptoms within days or weeks
* Immunosuppressants such as azathioprine, mycophenolate mofetil, cyclosporine, methotrexate, or tacrolimus - these may be added if corticosteroids alone aren't enough or to reduce steroid side effects
* Complement inhibitors like eculizumab or rozanolixizumab-noli - targeted therapies for specific antibody types
* Thymectomy (thymus gland removal) - can help rebalance the immune system in some cases

For emergency situations or severe flares, treatments include plasma exchange and IVIg therapy, which work quickly to manage acute symptoms. Living alone with severe symptoms is understandably frightening. Work closely with your neurologist about adjusting your medication doses and exploring additional treatment options. Your doctor will monitor you carefully for side effects and adjust your regimen as needed.

Since infections are the most common trigger for flares and myasthenic crises, take extra precautions with hand-washing and avoiding sick contacts. Keep all your healthcare providers informed about every medication you take to avoid dangerous interactions.

Yes, flares can still happen even with medication, which is why having an emergency plan with your doctor is important.

November 18, 2025

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