Answer Summary
Members shared their experiences with sudden extreme fatigue and heaviness, with several confirming they have felt similar symptoms, including... Read more
Interesting
Wow it sucks, I really think I have had severe attacks like this twice in the past two years and they presented like a TIA but were never medically backed up. I honestly believe they were MG attacks
It's great your doc is so involved. An EMG and that blood test just for MG will be very conclusive. I've had both. Twice. because your dx's can change because MG is progressive.
And I don't think it's anything we do to make it progress.
I read a paper that said it changes as we age.
I was dx'd at 51 with ocular. At 64 in April my dx changed to gmg.
I have seronegative MG and experience the symptoms you describe.
Thank you, yes I just left my neurologist appointment and he said some of those symptoms might be MG, but not all…he said MG shouldn’t cause tingling or numbness…luckily it passed and I’m fine, but I love that he was very interested and engaged in learning more about all of the neurological symptoms I am experiencing which he said also lead him to believe I may be showing signs of an additional issue. We are working on getting a kit to send off my blood to be studied in a live wet sample versus dry sample to try and narrow down the type of MG I possibly have. He did I say I’m crushing it at being a 🦄