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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
November 10, 2025
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Answer Summary

Members shared their experiences with sudden extreme fatigue and heaviness, with several confirming they have felt similar symptoms, including... Read more

Members shared their experiences with sudden extreme fatigue and heaviness, with several confirming they have felt similar symptoms, including tongue tingling, body shutdown sensations, and episodes that resembled transient ischemic attacks but were ultimately linked to myasthenia gravis. Many emphasized the importance of seeking emergency care when these frightening symptoms occur, with one member crediting her daughter for getting help during two scary episodes this year. A recurring theme was the complexity of diagnosing MG, especially seronegative cases, and the value of having an engaged neurologist who listens and pursues specialized testing like live wet blood samples and EMG studies to track the progressive nature of the disease.

A MGteam Member

Interesting

November 10, 2025
A MGteam Member

Wow it sucks, I really think I have had severe attacks like this twice in the past two years and they presented like a TIA but were never medically backed up. I honestly believe they were MG attacks

November 10, 2025
A MGteam Member

It's great your doc is so involved. An EMG and that blood test just for MG will be very conclusive. I've had both. Twice. because your dx's can change because MG is progressive.
And I don't think it's anything we do to make it progress.
I read a paper that said it changes as we age.
I was dx'd at 51 with ocular. At 64 in April my dx changed to gmg.

November 20, 2025
A MGteam Member

I have seronegative MG and experience the symptoms you describe.

November 10, 2025
A MGteam Member

Thank you, yes I just left my neurologist appointment and he said some of those symptoms might be MG, but not all…he said MG shouldn’t cause tingling or numbness…luckily it passed and I’m fine, but I love that he was very interested and engaged in learning more about all of the neurological symptoms I am experiencing which he said also lead him to believe I may be showing signs of an additional issue. We are working on getting a kit to send off my blood to be studied in a live wet sample versus dry sample to try and narrow down the type of MG I possibly have. He did I say I’m crushing it at being a 🦄

November 10, 2025

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