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I ask to see if you found your MG symptoms severe enough that you needed living in an assisted living community and/or nursing community for support?

If you are in an assisted or nursing community, are they equipped to support you? Do they recognize the disease, MG?

August 27, 2025
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Answer Summary

Members responded to a question about living situations with myasthenia gravis, and the majority shared that they live at home, often with the... Read more

Members responded to a question about living situations with myasthenia gravis, and the majority shared that they live at home, often with the help of a spouse, children, or close friends who assist with driving, cleaning, and daily tasks. Several members described practical strategies for managing independence, including pacing activities, breaking chores into smaller sessions, taking daily naps, using mobility scooters, and installing grab bars or handrails. A recurring theme was gratitude for strong support networks, the importance of self-advocacy and energy management, and the encouragement that with the right help and adjustments, many people with MG can maintain meaningful independence.

A MGteam Member

I’m in my owm home and don’t intend to leave

March 15
A MGteam Member

When I was first diagnosed Oct 2025 and after a week in the hospital when I got released the social worker wanted to put me in a rehab center. My husband said absolutely not. I am retired. She’s coming home and I will take care of her and he did I could not do anything for myself. Fast forward to may 2026 I’ve come a long way and starting my new self. Hang In there it gets better.

May 29
A MGteam Member

At 70 I still live at home with my wife.

September 16, 2025
A MGteam Member

SheilaNelson, I hope being back home soon lifts your spirits & fortifies you for the surgery ahead. 😊

September 10, 2025
A MGteam Member

I will be going home in a couple of days, but I will have more surgery down the road. The worst is over and once I have the surgery I will be able to get my life back to a normal state and routine. I am looking forward to seeing that happen.
Thank you all for the hugs and prayers and support.

September 10, 2025

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Vero Beach, FL