I ask to see if you found your MG symptoms severe enough that you needed living in an assisted living community and/or nursing community for support?
If you are in an assisted or nursing community, are they equipped to support you? Do they recognize the disease, MG?
Answer Summary
Members responded to a question about living situations with myasthenia gravis, and the majority shared that they live at home, often with the... Read more
I’m in my owm home and don’t intend to leave
When I was first diagnosed Oct 2025 and after a week in the hospital when I got released the social worker wanted to put me in a rehab center. My husband said absolutely not. I am retired. She’s coming home and I will take care of her and he did I could not do anything for myself. Fast forward to may 2026 I’ve come a long way and starting my new self. Hang In there it gets better.
At 70 I still live at home with my wife.
SheilaNelson, I hope being back home soon lifts your spirits & fortifies you for the surgery ahead. 😊
I will be going home in a couple of days, but I will have more surgery down the road. The worst is over and once I have the surgery I will be able to get my life back to a normal state and routine. I am looking forward to seeing that happen.
Thank you all for the hugs and prayers and support.