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Yes, happens to me frequently. I am new to understanding the diagnosis but I think it has to do with the muscles being tired. They actually have to work voluntarily to exhale instead of involuntarily. Which then you accidentally hold your breathe.
Johanna, I am going to add this comment here as I can’t find a place to add a comment near your question about trouble with words.
If your daughter finds she is slurring words - that is an MG symptom.
It is called a bulbar symptom. It refers to symptoms that are caused by weakness of muscles in head, neck and jaw.
Refer to the article in the Resources section : Myasthenia Gravis Bulbar Symptoms: Weakness in Head and Neck Muscles
Overall there are easy to read articles available in the resources section of this portal. Johanna. You have raised good questions. Thank you for sparking team dialog.
And regarding daytime sleepiness - it will help if you can find out why she is sleepy. The muscle fatigue and weakness of MG can cause sleepiness- but sleep apnea, medication , insomnia/ sleep disturbance can impact excessive daytime sleepiness.
See article: Sleep Right, Sleep Tight : https://myasthenia.org/blog/2021/06/08/sleep-ri....
Hope helpful.
Back about 10 years ago, at work, the person behind me used to say “breathe”. She saw I wasn’t breathing. Respiratory therapists would say use oxygen as they saw I was slow to saturate (oxygen ). I also had a PT tell me my diaphragm was inhaling only in one direction and not another.
So per above, bottom line: asthma was important to take care of. Also seeing a lung specialist helps.
Ty her primary doctor did send her to a pulmonologist
I told my neuro and she sent me to a pulmonary specialist.
That can be scary. I went through some exams and he said I had asthma. He was very thorough. Now when that happens especially at night I take a couple of puffs and I sleep through the night.
Our muscles get weak so easily
Check with her doctor.
Stay hopeful 😎
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