Never trust Robert Kennsdy. He is not a medical professional. He is like a peddler of quack potions like in olden days. He is dangerous and tearing our health system to pieces. People will and have died on his ideas.

I normally do not ask questions about other people's issues but this might be a good time to reach out to Robert Kennedy he is a advocate I trust.

I have but with insurance saying no to Vyvgart, it would take a ton of assistance to pay for it all.

Have you heard about The Assistance Fund? They help with covering whatever your insurance doesn't.

Well...Vyvgart was denied. Still doing IvIG and getting sick from it. CellCept has been discontinued and replaced with Imuran. We shall see on that. In the meantime, GAD65 score was really high and the doctor has added Stiff Person Syndrome to the list of diagnosis'. Waiting to see if Rituximab will be approved. I'm still feeling pretty defeated. I feel like my doctor is not listening to anything I say - proof of that is that I recently read the "After Visit Notes" and they had some gross errors. He did not hear a word I said nor did he look at bloodwork or any notes I brought. I am currently interviewing other doctors.
Hope you are doing well! Have a great rest of your week and weekend!