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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I was recently suspected of myasthenia without a formal diagnosis. If my antibodies were all good can it be something else (have eye droop)

A MGteam Member asked a question 💭
Wilmington, NC
June 24, 2025
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A MGteam Member

I take my mestinion 60mg 5x a day and cellcept 250mg 2x a day. I’d definitely check with your neurologist.

March 29
A MGteam Member

Thanks Terri. The mestinon appears to work sometimes for short amounts of time but it does seem to be working longer as time and days roll on. Would you suggest I keep taking it 3 x a day like that every four hours?

June 25, 2025
A MGteam Member

I am seronegative also. I did have some changes on my rep stim test. Main thing is if the treatment for MG like mestinon, steroids and other medicines help trust the process. I only take mestinon every four hours and I’m on lose dose steroids. I will be getting ivig because of a recent flare that las lawyer over a month now

June 25, 2025
MGteam

Even if your antibody tests come back negative, you could still have myasthenia gravis. About 15% of people with MG don't have detectable AChR antibodies. In these cases, doctors need to run additional tests to confirm the diagnosis.

Key tests that can help confirm MG beyond antibody testing include
- Electromyography Show Full Answer

Even if your antibody tests come back negative, you could still have myasthenia gravis. About 15% of people with MG don't have detectable AChR antibodies. In these cases, doctors need to run additional tests to confirm the diagnosis.

Key tests that can help confirm MG beyond antibody testing include:
- Electromyography (nerve conduction study)
- Repetitive nerve stimulation
- Eye muscle electrical response testing One MGteam member shared that their "diagnosis was not confirmed until I had an EMG. My neurologist was convinced at the first visit that I had MG, but the blood work did not confirm this."

Getting diagnosed can take time and patience. It's important to follow up with your neurologist and complete all recommended testing to get an accurate diagnosis and proper treatment plan.

June 24, 2025

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