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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I’m a 63 year old woman diagnosed officially a year ago even though I know I have had MG for a long time before that can MG lead to dementia

A MGteam Member asked a question 💭
Sydney, AU

Apart from MG,I also have NF1,
Dyspraxia,a pituitary adenoma and rapid cycling bipolar 2 and am totally confused as to what comes from which diagnosis and haven’t found a Doctor to help

April 26, 2025
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7 Myasthenia Gravis Symptoms: Eye and Heart Problems, Weakness, and More Read Article...
A MGteam Member

Alice .. it was announced by the Myasthenia Alliance Australia this morning that the Pharmaceutical Benefits Advisory Committee has recommended that four new treatments be listed on the Australian Benefits Scheme for patients with generalised MG. There have been surveys and the opportunity to make personal submissions about the impact of gmg. I highly recommend you sign up to the Alliance. It will be some months before the treatments become available on the PBS. You can subscribe via https://myastheniaalliance.org.au/subscribe/. MG is not a common condition so don't expect too much from your regular GP. Your GP can however make a recommendation to a neurologist who specializes. The MAA has a video from earlier this year with presentations from 3 Australian specialists.. check it out as I'm pretty sure one is in Sydney. I have had to wait some months but now have an appointment in Melbourne in June. From my experience you need to be actively involved with this condition.. do your research, join the association/s, ask for what you want and need and be assertive about it. It is unique to each sufferer so there won't be a one size fits all treatment. There will be a State Association where you are. Join. You may get early access to a new treatment, and best of luck.

Subscribe – Myasthenia Alliance Australia
Subscribe – Myasthenia Alliance Australia
https://myastheniaalliance.org.au/subscribe/
April 30, 2025
A MGteam Member

The only support I have to give is please please please if you are able just start reading the articles in the resource menu. You will walk away knowing more than your doctor while God is working on blessing you with a specialist.
Stay hopeful 😎

April 28, 2025
A MGteam Member

How do you stop the problem with brain function as I’m forgetful,often dreamy,unfocused and uncoordinated

April 26, 2025
MGteam

Research has shown that MG can affect cognitive function. Brain scans of people with MG have revealed certain areas of the brain may be smaller compared to those without MG, which can impact memory and learning abilities. However, this is different from dementia and manifests more as brain fog and cognitive fatigue.

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Research has shown that MG can affect cognitive function. Brain scans of people with MG have revealed certain areas of the brain may be smaller compared to those without MG, which can impact memory and learning abilities. However, this is different from dementia and manifests more as brain fog and cognitive fatigue.

These cognitive symptoms in MG can include difficulty concentrating, forgetfulness, and mental fatigue. Many people with MG experience these symptoms, particularly during flare-ups. The most important step is to work with an MG specialist who can help coordinate your care. They can help determine which symptoms are related to MG and which may be from other conditions. They can also provide referrals to other specialist teams as needed and help develop a comprehensive treatment plan.

Consider keeping a detailed symptom diary and writing things down on a calendar to help track and manage daily tasks. One MGteam member found this helpful for managing cognitive symptoms, noting it helps them remember simple day-to-day tasks.

April 26, 2025
A MGteam Member

Not sure we can help the forgetfulness. Haven't seen anything on relieving it.

April 27, 2025

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