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Yvette there are no support groups for MG in South Carolina it would be great and helpful if it was. Hope there will be a support group one day that is close for everyone to drive to where it is.
Good morning !
Yvett and Tracy, if you are taking infusions for your MG, contact your vendor/support person. Usually they have an education program person an they will know if there is a local group, one that meets in person and, if you are lucky, also has zoom meetings.
I did a search and did not see anything for South Carolina or Greenville, SC. I messaged the SC Neurological society. This is the society for Neurologists in SC. They might know. Will keep you posted.
Maybe someone here knows, but that is the last option I can think of. Maybe with rarity of the disease there isn’t a support group in each state unless individuals work on creating one?
Let’s see what more feedback we get from Yvette’s question.
Have a good day!
Support groups can be incredibly valuable for people with myasthenia gravis. While the search results don't specifically list South Carolina groups, there are several ways to find local support:
Contact the Myasthenia Gravis Foundation of America (MGFA) directly - they maintain a database of local support groups and can Show Full Answer
Oops, here’s a national list of support groups that meet:
https://myasthenia.org/living-with-mg/find-supp...
Hi,
The closest I can find are Roanoke VA and Richmond VA - but the do provide teleconference ability- so they are in your time zone. I will check in with our community manager so we can set up one/ but sometimes it’s good to expand friendships by participating in multiple groups as you wish!
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