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Members enthusiastically supported the idea of starting a virtual Myasthenia Gravis support group via Zoom, with several expressing interest... Read more
We are discussing starting a support group 2 x a month.
Person in charge is Jim Jeffries
TY I can't get to an in person support group.I can't drive now
Your information is very helpful. I have a counseling background. and would be glad to run it, but if someone from MG group wants to run it that is fine with me.
I think twice month would be use useful
FYI, I found the For myasthenia gravis support in Pennsylvania, you can contact the Myasthenia Gravis Association of Western PA (MGA) at (Phone number can only be seen by the question and answer creators) or (Email address can only be seen by the question and answer creators), or explore the Myasthenia Gravis Foundation of America (MGFA) for resources and support.
Here's a breakdown of resources and support options:
Myasthenia Gravis Association of Western PA (MGA):
Contact: (Phone number can only be seen by the question and answer creators) or (Email address can only be seen by the question and answer creators)
In-person support group: They hold in-person support group meetings, for example, on Saturday, March 15, 2025 at 12 PM at the Panera Bread in the Waterworks Mall.
Website: mgawpa.org
Myasthenia Gravis Foundation of America (MGFA):
Website: Myasthenia Gravis Foundation of America
Find Support: They have a page to find MG support groups.
Financial and Support Assistance: They offer financial assistance for out-of-pocket costs associated with prescription medication and insurance premiums.
Mission: To support those living with MG and create connections for the MG community.
Lehigh Valley Health Network (LVHN):
Myasthenia Gravis Support Group: LVHN offers a myasthenia gravis support group at the Kasych Family Pavilion at Lehigh Valley Hospital–Cedar Crest.
Contact: For more information, you can contact the Fleming Neuroscience Institute.
Other Resources:
Conquer Myasthenia Gravis: Conquer Myasthenia Gravis is another organization that supports people with myasthenia gravis.
Also I am going to post this with Yvette and Tracy question too. I will explore getting a zoom line for a weekly call.
Throughout the U.S. these states have let the Myasthenia Gravis Foundation know the run support groups.
https://myasthenia.org/living-with-mg/find-supp...
Support groups can be incredibly valuable for people with myasthenia gravis, whether meeting in person or online. Virtual connections through platforms like Zoom can help create meaningful support networks, especially for those who may have mobility challenges or live in areas without local support groups.
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