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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
December 5, 2024
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Answer Summary

Members connected over the question of whether myasthenia gravis changes how food tastes, with many confirming they have experienced this... Read more

Members connected over the question of whether myasthenia gravis changes how food tastes, with many confirming they have experienced this frustrating symptom, including metallic flavors in coffee, foods seeming spoiled when they are not, and a general dulling of taste or loss of hunger signals. Several members attributed these changes to medications, particularly prednisone and Mestinon, rather than the disease itself, with one member noting that prednisone actually increased their appetite despite altering taste. A recurring theme was the difficulty of enjoying once-loved foods, with members suggesting switching brands, checking with doctors about medication side effects, and eating even when hunger cues are absent to maintain nutrition.

A MGteam Member

I have had the same issue. I am extremely picky and even at times the things I will eat taste different.

December 8, 2024
A MGteam Member

I'm on prednisone, so I'm looking forward to dinner as I'm eating lunch!

December 5, 2024
A MGteam Member

Me also I will cook something that I've been craving.....then it just taste the way I think it should

December 8, 2024
A MGteam Member

Hi Brinda, yes, I definitely agree with you.....some foods and drinks taste weird nowadays. My coffee has a strange metallic taste to it. I love coffee and can't bear the thought of not having my one cup per day. I'm going to switch brands and see if that helps.

December 6, 2024
A MGteam Member

I haven’t noticed that. I’m on Soliris and Cellcept for MG.

December 5, 2024

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