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LRP4 positive MG

6 days ago
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A MGteam Member

It depends on you and the ivig you are getting. My first one was gamunex-c - it took 2 days being it was my 1st time and they set the drip very slow to see if any reactions. First day was 5 hours - 2nd day less. Then I just get monthly ivig 1 day for about 4hours.

5 days ago
MGteam

It's completely understandable to feel confused — IVIG schedules can vary quite a bit from person to person, and there's no single "standard" routine that applies to everyone with MG.

When IVIG is used to manage a flare or crisis, it's typically given as a short-term treatment lasting 2 to 5 days, or sometimes as a single Show Full Answer

It's completely understandable to feel confused — IVIG schedules can vary quite a bit from person to person, and there's no single "standard" routine that applies to everyone with MG.

When IVIG is used to manage a flare or crisis, it's typically given as a short-term treatment lasting 2 to 5 days, or sometimes as a single larger dose. The exact schedule depends on factors like:

- Your body weight
- How long you've been receiving treatment
- How severe your symptoms are
- How your body responds It's also worth knowing that symptom relief may not be immediate — it can take a few weeks before you notice a meaningful difference after an infusion.

For ongoing management (not just flares), some people receive IVIG on a recurring schedule, and the timing and dosing can be adjusted based on how well it's working for you.

Since schedules are so individualized, the best person to clarify your specific plan is your neurologist or MG specialist. They can tailor the frequency and duration to what works best for your situation.

6 days ago
A MGteam Member

Ariana - is that diagnosis musk?

5 days ago

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California, CA